Archive | May, 2013

Preoccupied

31 May

The days seem to pass and we are enjoying them. I have spent a lot of time getting transfusions and maintaining this new life. My heart and my my mind have been preoccupied and overwhelmed with the days ahead. Over the last 3 weeks I have grown a tumor on my leg that has become extremely painful. This has put a real damper on being a active and involved mom. I sit more than ever because the pain is so great to stand. We hope that this treatment will help with that pain. We enjoyed a night at the pool together. It’s wonderful to hear your kids scream in sheer delight!

Please continue to pray for John.

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A game plan

28 May

We have decided that this girl still has some fight in her and so we plan to pursue another trial drug at MD Anderson that has a chance of putting me in remission to receive the bone marrow transplant that is necessary for us to beat this disease. The odds aren’t high but this trial has had some success in putting other AML patients in remission. I will need to be in Houston for at least 3-4 weeks. I am hopeful, and continue to trust in His plan. All these decisions have required a lot of faith and trust. Please continue to pray for the many things that surround this process.

He turns rivers into a desert, springs of water into thirsty ground, a fruitful land into a salty waste, because of the evil of its inhabitants. He turns a desert into pools of water, a parched land into springs of water. And there he lets the hungry dwell, and they establish a city to live in; (Psalms 107:33-36 ESV)

Prayers needed

27 May

Many of you that have followed will remember my “old man” friend John O. I received a text that he had recently had the flu. He didn’t recover well from this weakness and needed to be flown to Cleveland Clinic. The next 48 hours are crucial for him. Thank you for praying.

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Traditions

27 May

The Memorial Day parade has been something my family has done for as long as I can remember. I have come to learn that I love traditions. There are many emotions and memories attached to this parade. Today it was cold and dreary, but we took in the parade because its tradition. I love doing things as a family. The days together have been good. At this point we are taking one day at a time. Please pray for clear direction for the days ahead.

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Knob and tube and blood transfusions

25 May

We have wanted ceiling fans for a long time in our upstairs bedrooms. We started this project once and ran into electrical issues we didn’t want to tackle five years ago. We are ready to tackle the old knob and tube and transform to new electric. The surprising thing is its Adam and his brother Chris are tackling this feet! Yesterday one fan was successfully in put place. This is a project! Exciting to see the change.

While all this is happening I am getting tanked up on blood both red and platelets. This takes time but you can’t fathom how it helps me feel more alive. I am fighting a minor infection but feeling well.

We have been in contact with MD Anderson and their are a few trials I qualify for. Please pray for wisdom as we pursue these options and seek His will.

“Behold, God is my salvation; I will trust, and will not be afraid; for the LORD GOD is my strength and my song, and he has become my salvation.”
Isaiah 12:2

Treasured Friends

22 May

The last two and half days our family welcomed two of my treasured friends to our home. Heather and Renee my roommates from junior and senior years at Taylor. We cherish those memories. This visit was different with its heaviness yet, joyful in our time together. Between the two of them they have the boys. The kids loved time with Sam and of course a baby(fin) is always intriguing for the kids. We spent time just being together sometimes there were words and others not. That is how you know you have a treasured friend, silence is ok. I am grateful for the solid, wise, loving, generous, and gracious friends He has surrounded me with.

Platelets

20 May

I have not spent much time on here sharing some of the needs of a blood cancer patient. I recently have had a hard time finding platelets that match my blood type. Thankfully platelets aren’t as pressing to match as red blood (hemoglobin). Many don’t realize that donating platelets is just as necessary as red blood. There are many like me that need your help to keep our bodies functioning, so if you are on the fence about donating blood consider whom you might help. Also inquire about donating platelets. It’s easy to overlook these opportunities when life is busy. I remember. But, now I have a better understanding of being in need and waiting.

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Time

19 May

The thing I find myself pondering the most lately is my use of time. What is important and what is not. I have never sat in the driveway to watch my kids play, but I did that today. It’s not natural I have things to do yet it feels necessary. Do they care that I am watching? No they are playing, why does it make me feel better that I am there? It’s not just the kids, I find that I question what I spend my time doing, and what might be time well spent. I can tell you one thing any time waiting in cancer centers feels like a waste! My mind is busily yet quietly pondering many aspects of time. I want more of it!

“Be strong and courageous. Do not fear or be in dread of them, for it is the LORD your God who goes with you. He will not leave you or forsake you.”

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Cousin Time & Gardens

18 May

The weather couldn’t be more beautiful. We love this season of open windows and doors, kids in and out enjoying the outdoors. Today we had a crew of friends show up to do our gardening. Within 2 hours they had our bushes trimmed, flowers planted and our garden planted. This is the second year they have done this for us knowing that I enjoy growing our vegetables. We are blessed by the work and time shared.

This weekend we have special company and the girls have been having a blast. Cousin Gracie and Jessica are here from NJ. They enjoyed a sleepover last night and lots of play time today. It’s been a treat to have them here and see how the kids reconnect. They are spoiling us while here, but its sure fun to be together.

As to me, I am gathering information for options going forward. Please pray for wisdom and His peace as we tread these waters.

“It is the LORD who goes before you. He will be with you; he will not leave you or forsake you. Do not fear or be dismayed.”
Deuteronomy 31:8

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Did you see us?

17 May

Last night we were driving home from the tumbling show talking to the girls.

Adam and I asked Paige, ” did you find us in the bleachers? We were waving at you.”

She replied, “mom I can always find you, and then I see dad you look alike, but then I see your earrings and know its you.”

I guess being bald has a few perks.