Archive | July, 2013

The escape

10 Jul

Tuesday night we made the great escape. After loading up on blood products and antibiotics we hustled out of jail. I was grumpy and as mom put it a bit moody while at clinic. Thankfully they discharged me with the understanding that I may have to return if fever returns or if cultures grow bacteria different than anticipated. I got home and could hardly wait to shower and shave, I hate using hospital showers. If you visit and I look grimy it could be true. :) . Sleep in my own bed was glorious, and we had the bonus of Mollie midway through the night due to storm!

Today felt good and ordinary, I miss that. The rain didn’t stop me from enjoying the sounds and smells of home. I love that life resumes to normal my kids still complain, whine and laugh. Our life is different yet ok. We took in dinner with friends while our kids played around us. Talk of life, cancer, summer and children. It’s good to be in fellowship with Adam and friends. We escaped for now, the reality of another hospital stay always looms but for now I am free!

Several things you can celebrate and praise Him for.
- my tumor on my leg is still there but pain free!
- my gums started to improve as of yesterday, they aren’t normal, nut much improved.
- I am home!
- my friend Shannon who has waited 4 years for a drug that could cure her cancer is getting the drug this week!

“Fear not, O land; be glad and rejoice, for the LORD has done great things!

Humbled and Loved

8 Jul

Packing and leaving for the Houston airport filled my heart with excitement and joy. I couldn’t wait to get home and be in my home and be with my family where my heart always resides. We arrived home exhausted from restless sleep and a long travel day; we were home! Sleep beckoned with anticipation of joining many of you at the Rallie. Adam knows me well and changed the sheets, as I love clean sheet day! I slept well. It was a struggle to get up, but the thought of joining my family at the Rallie was enough to get this body moving. I was exhausted but blessed to share in the day.

As we pulled in and saw the overflowing parking lots of cars I was simply amazed. Are all these people here for us? The support that was given to our family through this event is humbling and encouraging. To see so many friends from many different parts of my life reminded me of how each phase of our life truly develops us into who who we are today. Each of you that I did or didn’t get to talk to thank you! I wish I had more energy to interact, but coming off of chemo just 24 hours earlier my body was not cooperating. I was honored to share in the day and watch as you all ran/walked for our family. I am not sure our girls understand completely, but I take great joy in sharing with them how your presence and support is a true reflection of how Jesus wants us to live. Your love, support, generosity and prayers mean so much and continue to carry us through these difficult days. This event and all involved blessed us beyond words..

Unfortunately throughout the day I brewed a fever. I tried to ignore it and move forward. I rested and hoped it away. We enjoyed a birthday celebration dinner for Adams birthday. I still didn’t feel great, but who does just 24 hrs after chemo? Sadly as the night progressed I developed a fever high enough to raise concern. After much stalling we decided we needed to follow the rules and go to the clinic. I was admitted after a long horrible ER experience. I am being treated for infection in my lungs. I hope to go home tomorrow. As you can imagine I am beyond antsy to be home!

20130708-171632.jpg

20130708-171649.jpg

20130708-171708.jpg

Rallie for Allie

4 Jul

I know many of you are aware of the Rallie Saturday, July 6. The information is attached to the blog www.livestrongarmstrong.com. I have received many inquires about registering day of. You may register that morning please arrive between 8:00 and 8:30 as they want to start run at 9:00 and walk at 9:30. Thank you for your interest in supporting our family. I look forward to seeing you at the finish.

20130704-100415.jpg

Round #2

3 Jul

Monday clearly was a hard day with the farewell to my loved ones and the disappointing news of marrow. We have bounced back as i can see a dim light at the end of the tunnel for now. Although it appears as though this drug did very little we have started round two. The Dr feels it will control the disease until I am able to be on this drug that is more specific to my translocation. I got started last night which has me completing day 3 tomorrow. This allows me to fly home Friday. I am thankful, and pray that I continue to feel well and remain fever free. We are excited to get home.

Dreadful quiet

1 Jul

Today my family headed back to Ohio, to “normal life” as we know it. This separation is tough and gets harder with each goodbye. The dreadful silence and emptiness of the apartment was hardly bearable. My sweet family makes my life so full and purposeful, and helps me forget this uphill battle we face. We had a wonderful time together and created more memories we all treasure.

Today was the big day, what did this drug do to my cancer? Sadly it did nothing to my bone marrow. I have learned to expectantly hope for God to change theses results, but to realistically face this aggressive disease. I can’t stop fighting yet, I still have the strength to endure more toxins to control the progression of the disease. I plan to do a re induction round of this last chemo to buy us time. With the hopes that I can start another trial drug that is more specific to my translocation. I am currently on the waiting list, and can only hope that this drug will be the right cocktail. I can face this next round of chemo because I know I can return home for some time at completion of the drug infusions. I must stay healthy to make it home!

Specific requests:
- I would remain fever free
- my body would remain strong as I put more toxins in to it
- my eyes would stay focused on Him and His love for us
- my family

I hope to be home for Rallie for Allie. I make no promises, but my family will be present. Paige says she is going to run the mile! Thank you to those who have volunteered to help and thank you for your support! We are blessed beyond measure.

20130701-194320.jpg

Family uno game with sweet Aubie!

Psalm 33
11 The counsel of the LORD stands forever, the plans of his heart to all generations.
12 Blessed is the nation whose God is the LORD, the people whom he has chosen as his heritage!
13 The LORD looks down from heaven; he sees all the children of man;
14 from where he sits enthroned he looks out on all the inhabitants of the earth,
15 he who fashions the hearts of them all and observes all their deeds.