Archive | August, 2013

Daddy dressed for fake out first day pics

28 Aug

Paige was disappointed that adam wasn’t dressed up on her official first day of school pics. But today daddy did dress up so these are our fake out first day of school pics with handsome dad!

School seems to be a hit!

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1st Day of school

28 Aug

We officially have a third grader and a kindergartener! Excitement abound in the AM, exhaustion in the PM.

Good day had by all!

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Sanctuary

26 Aug

I made it to His House yesterday and it felt good to enter a sacred place. I had the privilege to take in songs and a message about how He will never leave or forsake. This truth I have embraced. The pastor that lead us in His teaching, is the man I can thank for “leading” my dad to Jesus. His influence on my dads life has passed on a lineage of Christ Followers. It was good to be in His Sanctuary with my family.

I look in the mirror and see nothing familiar, the disease is working its own, raging way. I have had good days. Kids start school tomorrow, I’m thankful to be a part. We continue to take a day at a time, thanking Him for each new morning.

Happenings

24 Aug

Can’t complain of the weather these past few days. The sun shone bright and I lay with expectations of a good day. I had a hankering for sweet potato cake. We enjoyed a ms. Julie’s cake and robecks adventure. Pool fun was had by all for the afternoon. Everyday is different here, we praise him for each day and seek to be together bringing joy to the moments. Several pics . Paige has wanted to be my sweet nurse. [...]

Local

21 Aug

The armstrong family has decided that we are staying local. We are going to fight against this beast in as many ways as possible. I had a setback this weekend. I began to experience similar bone pain that put me in the hospital in Michigan. Thankfully a bit more prepared with pain meds and experience we are home working through these set backs. I am still experiencing pain, some pain but managing it. As we continue to pray for a miracle. Pray that the pain would subside so I can better enjoy my family

Brief update

16 Aug

As I have gained some strength I have had the chance to get out more. The sun shining is of course motivation to get off the couch. I have enjoyed the zoo from a wheel chair perspective with friends and taken in the pool, along with trying to see friends. It is good yet still very limiting and frustrating.

You can pray for direction this weekend as my heart has begun to wonder if I need to try this last trial drug that is more specific to my genetics. It would require our family spending a month away again. My heart is torn as to wait until its time is hard to wrap my mind around, yet this trial is still a long shot. But I ponder if it just gives me more time. Please pray for direction. We are grateful.

It’s me

12 Aug

I know you have not heard from me in the past few weeks. Thankfully once getting home from Michigan things have improved. I am tired come the end of the day. I am working hard at putting my energy into my family. At this time we have chosen to forgo any more research drugs, mostly because if the drug were to work I would still not be cured and would need to undergo another transplant. At this juncture we realize my body cannot take more chemo. My organs are working fine but are compromised greatly from all my treatments over the last year and half.

This is in hard decision yet allows me to be present with my family in the weeks ahead. The doctors seem to feel my disease is quite aggressive as we have already seen. They feel my time is limited. This is a lot to process. Even though we know death is the end of this disease it doesn’t make the process any easier. The greatest thing is I have hope. The hardest thing is I have three beautiful children and a husband that I want to do life with. I praise Him for each day and ask for more time. I continue to need blood transfusions twice a week. My energy level is low for me. I am still functioning, yes even driving. My ability to “do” for my family is minimal which is the most frustrating thing for me. I sit a lot, hence I have a very sore bum. My mind is at peace most of the time. Knowing this is not in my control.

I still pray for a miracle, but I also pray for my sweet family. This has affected a wide circle of my community. I am blessed by your love and support. As to visitors, I am protecting my time but if I can see you I will. Thank you for your prayers for all of us.

But I am not ashamed, for I know whom I have believed, and I am convinced that he is able to guard until that Day what has been entrusted to me. (2 Timothy 1:12 ESV)

Words from Aunt Tara

10 Aug

This is Aunt Tara posting for Allie tonight. She is lying here next to me resting so she asked if I would like to blog for her…I find it an honor to post for her! I flew to Michigan almost two weeks ago to join in our annual family vacation which has always been one of Allie’s “all time” favorites and it has been a wild ride ever since! All of you who are followers of the blog know of her journey these past few weeks, and that brings us to today…

As my time here in Ohio comes to a temporary end, my emotions are all a over the board. I have been the “opinionated Aunt”, and nutritional nightmare, as well as her slumber partner since returning to Ohio, so have seen every part of Allie. Her ups and downs, the aches and pains…and through it all, she praises her Lord and wants to do His will.

As I was creaming her body today, I said to her “I just can’t get enough…” Her reply was “just shake it and more cream will come out…” I told her no Allie, I just can’t get enough of you…

Allie has always challenged me in my walk with The Lord…in my darkest times she has encouraged me to trust in Him, she has been an inspiration to me for 32 years, she is my sweet sweet angel.

Isaiah 41:10 NKJV “Fear not, for I am with you; be not dismayed, for I am your God. I will strengthen you, Yes, I will help you, I will uphold you with My righteous right hand.”

Leavin on a jet plane!

7 Aug

This is mom wanting to thank all of you that are reading Allie’s blog and praying for her and our family! We are confident that The Lord continues to hold us in His hand.

Allie had a very discouraging stay in the hospital and by His grace and her perseverance she is finally home. Being that Allie spent the last 5 days in ICU we were very concerned as to how she should travel. After much discussion, my brother Ed pursued arranging a private plane turning a 6 hour car ride into a 45 minute flight!! We felt like the rich and famous!

Unfortunately, Allie left the hospital with some bone pain in her ribs and fluid retention of at least 9 liters which has caused her lots of discomfort. Pray for this to be resolved and management for the bone pain.

We were blessed to have family in Michigan who loved and entertained the kids making each day very special for their vacation.

Allie’s condition although improved is such that we would ask that visitors would wait until she recovers. We appreciate your faithful prayers in this most difficult journey.

psalm 143:8 “Let the morning bring me word of your unfailing love, for I have put my trust in you. Show me the way I should go, for to you I entrust my life.”

Standby Status

5 Aug

This update is from Adam.

First, let me give a brief update of where things stand with Allie. After being admitted last week Allie’s symptoms changed daily. What started as predominantly a problem with bone pain has morphed into a respiratory issue. Her pain meds have been cut to almost nothing but she is needing oxygen. They are working hard to prepare Allie for transport. While we were initially intending to make it to MD Anderson, they have no space and will not accept a transfer from an ICU. So, now we are working on a transfer to Cleveland Clinic most likely by ambulance. Today they are making calls and trying to communicate between doctors and hospitals. I expect the earliest we would move would be tomorrow. As for specific requests, pray that Clinic will accept Allie, pray that her oxygen needs are low enough to be accepted onto the leukemia floor rather than the ICU at the Clinic, pray for her ears as she is having trouble hearing. This is pretty frustrating for Allie since she loves people and is struggling to be able to communicate.

Second, I wanted to thank everyone for their calls, texts, and prayers. When Allie was resting I would read them and I was incredibly thankful to be reminded of how impactful Allie has been and how much she is loved. She is still fighting and it is still doing things that only Allie does. Despite being in ICU she convinced her nurses to go for a walk. She has an IV pole and an oxygen tank and two nervous nurses and she wants to make it to the next desk. Despite only being here a week and being pretty sick, she has already bonded with her nurses. She always has been an easy one to love.

23 When he was reviled, he did not revile in return; when he suffered, he did not threaten, but continued entrusting himself to him who judges justly.
1st Peter 2:23