Another update

21 Jul

Guess where I am sitting? I am on a plane back to Houston for a biopsy which will mark the end of the cycle for the trial drug I am on currently. It was wonderful to be home. This is where I belong and hope to resume my role as wife and mom again very soon. As we already know the first induction round of this trial did nothing for my bone marrow. I wish I could say I was optimistic that this second round did something, but as I see how my gums have worsened again and possible new tumor growth on my other leg it is clear the drug helped temporarily. It seems that as soon as the chemo is out of my system the cancer just keeps doing its nasty thing. I am having a bone marrow biopsy in the morning and see Dr. Ggm in the afternoon. It will be a full day. I know I will need blood products. As we have shared before MD can turn into an all day affair quickly. I will see infectious disease on Tuesday to keep tabs on my pneumonia, I am hopeful that all will go well. I hope to return home on Wednesday to see my Paige perform in the musical she has worked hard at while at drama camp, and join my family on our annual vacation.

Thankfully with the help of family in Michigan I am able to receive products while we vacation. It will be good to be with my family and partake in what I can. This vacation is quite nostalgic for me. I love it we have gone since I was 5 and it is a highlight to my summer. A old cottage on the beach, family, beautiful sunsets and family adventures. I am hopeful to be there this year.

The drug that I have mentioned prior which is targeted to my translocation is open. My dr would like to give the drug a few weeks . This would allow them to work on dosage and hopefully allow me to get good results. Meaning I wont be the second person on the drug, yikes! We will develop a plan tomorrow. Please pray that His plan is clear to us. It’s so hard at times to know if I am pursuing what He wants. I trust as we seek His will He is leading, but there are days I wish He would hollar at me, “This way Allie, come with me! ” We keep taking each day in stride, begging to hear and see Him in this journey.

Trust in the LORD with all your heart, and do not lean on your own understanding. Psalm 3:5

For thus said the Lord GOD, the Holy One of Israel, “In returning and rest you shall be saved; in quietness and in trust shall be your strength.” But you were unwilling, Isaiah 30:15

13 Responses to “Another update”

  1. Bethany July 21, 2013 at 11:45 pm #

    Allie,
    We are praying every day for you. We will also pray specifically for medical wisdom, spiritual guidance, and for you to see God’s “hollers”. You are so missed at ABF.
    Love,
    Bethany

  2. Danielle Knepp July 21, 2013 at 11:51 pm #

    You’re in my thoughts and prayers. I send my love.

  3. Ellen Patrino July 22, 2013 at 7:50 am #

    Keeping you in our prayers. We will also say a special prayer that you have a great family vacation.

  4. Pam July 22, 2013 at 8:29 am #

    I lie down and sleep again, because the LORD sustains me. Psalm 3:5

    …in all your ways acknowledge him, and he will make your paths straight. Proverbs 3: 6

    Whether you turn to the right or to the left, your ears will hear a voice behind you saying, “This is the way; walk in it.” Isaiah 30: 21

  5. Jean July 22, 2013 at 8:38 am #

    Allie,
    I continue to pray for strength and healing for you. Our Lord is by your side with every step that you take. Keep your eyes on the Lord. His plans will be revealed.

  6. Aunt Sue July 22, 2013 at 8:54 am #

    i know how emotionally healing your Michigan vacation can be. Praying for a quick turn around in TX and you on your way to MI. Just park yourself on the front porch, enjoy the sounds of the children, the smell of the air, toes in the sand and lots of good food. Love you sweetie.

  7. Liz in Austin July 22, 2013 at 11:56 am #

    Jim and I will keep you in our thoughts and prayers today as we do every day, Allie!
    Take care Beautiful Friend!

  8. lori habeck July 22, 2013 at 1:04 pm #

    hi allie….praying that you get in and out of that Texas hospital quick! love you! xo

  9. Libby July 22, 2013 at 2:36 pm #

    Dear Friend,

    Praying for you. Praying for healing, for unexpected healing and relief. Praying for a fast turn around back to your family and much needed time in MI.
    “He gives strength to the weary and strengthens the powerless.”

    Love you friend!

  10. Vicki July 22, 2013 at 2:43 pm #

    I hope you will be able to go to Michigan. I know how much that trip means to you and your family. Take Care.

    Love You

  11. Jodi Tucker July 22, 2013 at 3:41 pm #

    Prayers for all your requests. He shines so bright through you! And we will keep
    petitioning Him daily on your behalf and for your beautiful
    family, too.

  12. Allison Rockwell July 22, 2013 at 7:04 pm #

    Looking forward to an update from your Houston appointments and biopsy. :)
    Sooo excited for your family trip to Michigan. It sounds so wonderful!!!! Love you..
    ps: I was so happy to hear Paige loves her theater camp!! She does have a talent for it…
    We miss your sweet girls.

  13. Janeanne July 24, 2013 at 12:31 am #

    Sending love and strength. You are an inspiration!
    Janeanne

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