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Platelets

20 May

I have not spent much time on here sharing some of the needs of a blood cancer patient. I recently have had a hard time finding platelets that match my blood type. Thankfully platelets aren’t as pressing to match as red blood (hemoglobin). Many don’t realize that donating platelets is just as necessary as red blood. There are many like me that need your help to keep our bodies functioning, so if you are on the fence about donating blood consider whom you might help. Also inquire about donating platelets. It’s easy to overlook these opportunities when life is busy. I remember. But, now I have a better understanding of being in need and waiting.

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Time

19 May

The thing I find myself pondering the most lately is my use of time. What is important and what is not. I have never sat in the driveway to watch my kids play, but I did that today. It’s not natural I have things to do yet it feels necessary. Do they care that I am watching? No they are playing, why does it make me feel better that I am there? It’s not just the kids, I find that I question what I spend my time doing, and what might be time well spent. I can tell you one thing any time waiting in cancer centers feels like a waste! My mind is busily yet quietly pondering many aspects of time. I want more of it!

“Be strong and courageous. Do not fear or be in dread of them, for it is the LORD your God who goes with you. He will not leave you or forsake you.”

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Cousin Time & Gardens

18 May

The weather couldn’t be more beautiful. We love this season of open windows and doors, kids in and out enjoying the outdoors. Today we had a crew of friends show up to do our gardening. Within 2 hours they had our bushes trimmed, flowers planted and our garden planted. This is the second year they have done this for us knowing that I enjoy growing our vegetables. We are blessed by the work and time shared.

This weekend we have special company and the girls have been having a blast. Cousin Gracie and Jessica are here from NJ. They enjoyed a sleepover last night and lots of play time today. It’s been a treat to have them here and see how the kids reconnect. They are spoiling us while here, but its sure fun to be together.

As to me, I am gathering information for options going forward. Please pray for wisdom and His peace as we tread these waters.

“It is the LORD who goes before you. He will be with you; he will not leave you or forsake you. Do not fear or be dismayed.”
Deuteronomy 31:8

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Did you see us?

17 May

Last night we were driving home from the tumbling show talking to the girls.

Adam and I asked Paige, ” did you find us in the bleachers? We were waving at you.”

She replied, “mom I can always find you, and then I see dad you look alike, but then I see your earrings and know its you.”

I guess being bald has a few perks.

Baldness, Miracles & tumbling

16 May

Today I had my head shaved for the third time. It’s unemotional and matter of fact these days. I enjoyed my hair and received many compliments, but third time is a charm, who knows what will come back this time.

Our news today was not what we hoped and prayed for. My biopsy revealed no change in my bone marrow. This news of course is disheartening and sets us on a new course of action. We will be sure that there aren’t any other trial drugs for my disease. We will know more soon. Ultimately, we continue to need a miracle.

Tonight we took in the tumbling show. Both Paige and Hayleigh performed and rolled and danced well. Each moment is cherished and every step observed, a proud momma watches each move.

It’s a new day tomorrow.

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Cleveland Clinic

15 May

We have certainly made a tour of hospitals and cancer treatment centers. Today we found ourselves back in Cleveland. The purpose of this visit is to give us direction for treatment. We will know more tomorrow. If by Gods grace we are in remission things will move quickly towards transplant. Other results will direct us as well. It could be easy to worry and fret about these results but ultimately, we remain in His embrace trusting that His way is the way we want to follow. We head to bed knowing we are loved and cherished by our Creator who knows all things. Thank you for praying and trusting with us.

2 Samuel 22:33
“God is my strength and power, and He makes my way perfect.”

Mollie meeting baby chicks.

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Mother’s Day

12 May

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I came home to this surprise from Paige. This is one of several notes/projects I have acquired over the past few days. I smile at how they view things and life. I never knew I was a Mac n cheese chef, but I will take it. Hayleigh answered that my favorite thing to do is spend time with her. This was comforting knowing my presence has been inconsistent.

Being a mom is an honor, joyful and draining, but their hugs, smiles, words make a day complete. Our perspective is different the lenses jaded a bit but we continue to praise Him for another Mothers Day. Not only being a mom, but having a dear friend in your mom makes this day doubly special. The love and gratitude I have towards my mom for the ways she has grown me is abundant. I count it a blessing to have her as my friend walking this life with us.

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Scripture

11 May

Do not be anxious about anything, but in everything, by prayer and petition, with thanksgiving, present your requests to God.
—Philippians 4:6

“Peace I leave with you; my peace I give you. I do not give to you as the world gives. Do not let your hearts be troubled and do not be afraid.”
—John 14:27

Bedtime singing

10 May

Recently I was reminded how I used to sing to the kids as I rocked them each night. Although there is no more rocking we have revived the singing. We have our usuals and occasionally I can sneak in a new one. Recently I added As the Deer. This classic has always been a favorite but, as I sing those word I am covered and reminded of this life’s purpose. Hope you end up humming with me the next few days.

As the deer panteth for the water
So my soul longeth after thee
You alone are my hearts desire
And I long to worship thee

Chorus
You alone are my strength my shield
To You alone may my spirit yield
You alone are my hearts desire
And I long to worship thee

You’re my friend and You are my brother,
Even though you are a king.
I love you more thank any other,
So much more than anything.

I want You more than gold or silver,
Only You can satisfy.
You alone are the real joy Giver,
And the apple of my eye.

Field Trips, Rewards & a Date

9 May

The weather has been uplifting and truly amazing. The sun and His beauty allow these days to feel normal and like a personal gift. Tuesday I was able to share in part of Hayleighs field trip. It’s fun to watch her interact with her peers. I haven’t had a chance to get to know her peers other than what she tells me. It was a delight to share in her busy day.

Mollie is officially potty trained. At the Armstrong household we celebrate this victory with a trip to Build-A-Bear. Mollie is in love with dogs at this moment so we have a new puppy in the house, his name has changed twice, and he most definitely has pink bows and a pink leash. As she was walking to bed she declared her delight, “build-a-bear was fun!” Another highlight as we entered BAB it was empty and, the ladies asked us why we were there? Mollie’s response,” I don’t pee in my pants anymore.” Honesty is a virtue.

Tonight Paige and I spent some time just us. We enjoyed conversation about the complexity of relationships in second grade. We took in face time that is essential for her. I love her tender heart. I am reminded of how my heart can be softer. Thinking like them can be challenging.

Simple yet rewarding.

1 Give ear to my words, O LORD; consider my groaning.
2 Give attention to the sound of my cry, my King and my God, for to you do I pray.
3 O LORD, in the morning you hear my voice; in the morning I prepare a sacrifice for you and watch.
4 For you are not a God who delights in wickedness; evil may not dwell with you.
5 The boastful shall not stand before your eyes; you hate all evildoers.
6 You destroy those who speak lies; the LORD abhors the bloodthirsty and deceitful man.
7 But I, through the abundance of your steadfast love, will enter your house. I will bow down toward your holy temple in the fear of you.
8 Lead me, O LORD, in your righteousness because of my enemies; make your way straight before me.

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