Updates

28 Dec

I noticed today as I answered a lot of questions that possibly I have not explained my status well. The doctors discharged me very early for Christmas, they broke the norm so I could be home. This is pending no fevers, and or other ailments that coincide with infection. I have returned twice to the clinic for outpatient treatment. This is where they check my counts and give blood products if necessary. I continue to be at my “low” from the chemo regimen and will remain here for probably a week.

In the meantime, we are waiting for a match to then proceed with a stem cell transplant. Currently in the national registry I have two preliminary matches. One we call a motivated donor because they went and already had labs done on December 19. The lab results take up to 3 weeks meaning we may know something next week. If they are a good match we would have a plan for what is next. If they are not a strong match we hope that among the existing co-op and the donors at the Kashi lab drive may provide a good match. Until we have a match the next move is to continue to wait, hope and trust. It’s a trend in my life. I must really need to get better at this. I am not a great passive waiter, i prefer to be actively pursuing a goal, but at this juncture I am embracing the waiting, hoping and trusting. We are Enjoying the days as they come for none of us are promised tomorrow.

On a lighter note my hairs are falling out again. I could have gotten used to a hairstyle.

10 Responses to “Updates”

  1. Jamie Williams December 28, 2012 at 10:55 pm #

    Dearest Allie,
    Your hair was looking adorable…and it will again…thank goodness for the cold weather…we all need a hat…so not to worry….the hair will be back and in the meantime you can save time and effort in styling! I am praying every day for a match…I know there will be one. 2013 is going to be to good year for us all….I just know it.
    XOXO
    Love,
    Jamie

  2. Tricia December 28, 2012 at 11:56 pm #

    So, Miss Allie, you are an inspiration! I don’t know you but I went to the drive tonight and there was so much love in that room! What is the reason for this ….. Who knows, but the people that have been added to the registry because of you….amazing! I pray for your strength and courage as you journey ahead…..and I pray I get the call!

  3. Aunt Sue December 29, 2012 at 8:38 am #

    You do rock the bald look as well as the wavy style you most recently had. No matter the style, you light up a room when you walk in. Praying continuously and love you so much sweetie

  4. Caryl December 29, 2012 at 8:58 am #

    I do always like Aunt Sue’s posts! You do light up a room Allie! CHRIST in you babe… Keep on keeping on!

  5. Christy December 29, 2012 at 1:08 pm #

    Allie, so glad you made it home on Christmas eve! Prayers are with you – good news that there are a couple of preliminary matches and at least one motivated one! One day at a time, and you do rock the bald :-)

  6. Sara December 29, 2012 at 4:47 pm #

    Allie, I am a registered donor and am praying I get a call to be your match. Would help in a heartbeat. If I am not your match, I am sure there is one out there. Love ya…

    • Gina Y December 29, 2012 at 7:29 pm #

      Awww-hair is so over-rated!! :) Keep your smile going kiddo-you still have an army praying for you. Trusting God to provide- you are a positive force in this battle. Love you

  7. Denise Ahern December 30, 2012 at 10:32 am #

    Hello Alli,

    I just wanted you to know I have been following your story and praying. I am inspired daily of your strength and faith in our God as you continue your journey. Your children are so lucky to have you as a mother.
    I praying the this year will be a turning point in your health and a return back to normalcy.
    God Bless,

    Denise

  8. Jamie Carr December 30, 2012 at 11:07 am #

    Great to hear that there are two potential matches! Don’t fret about the hair. At least yours will come back!! And besides, you’re a beautiful person with or without it.

  9. Ellen patrino January 2, 2013 at 4:03 pm #

    Hi Allie it has been too long since I looked at your blog and Isit herewith a heavy heart. Allie can I tested to help with the stem cell? Tell me where to go, or who too contact. I can do it as soon as possible.

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